Meet Frankee-Lee. When I first read about Frankee, it was today in The Examiner. She wasn't born with ear canals and she is bilaterally deaf. She can hear again with surgery that will cost $100,000. Read her story, visit her website.
Here's the beginning:
Frankee-Lee Shaw was born on the 16th of July 2009, in Latrobe Tasmania
Beside themselves, irritated and worried they had to accept the diagnosis.
When Frankee was 6 months old, they moved to Noosa, Qld. It was there at 19 months old it was supposed that she had Glue Ear and would call for grommets. It was a critical moment, as the operating theatre is when they got the news that should have been diagnosed the day she was born, the devastating news that Frankee didn't have any ear canals and that she is bilaterally deaf. At the follow up appointment at the Ear Nose and Throat specialist is when they were introduced to the name ATRESIA, so rare that 1 in 10,000 children are born with it. When their beautiful baby girl was fitted with hearing aids, and then began their journey through Auditory -Verbal Therapy.
When Frankee was 6 months old, they moved to Noosa, Qld. It was there at 19 months old it was supposed that she had Glue Ear and would call for grommets. It was a critical moment, as the operating theatre is when they got the news that should have been diagnosed the day she was born, the devastating news that Frankee didn't have any ear canals and that she is bilaterally deaf. At the follow up appointment at the Ear Nose and Throat specialist is when they were introduced to the name ATRESIA, so rare that 1 in 10,000 children are born with it. When their beautiful baby girl was fitted with hearing aids, and then began their journey through Auditory -Verbal Therapy.
Every dollar counts for one of our own, right?
Tams.x
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